This afternoon 17 June we found out just how seriously they’re taking Ashton’s latest medical issue when an appt letter for the endocrinologist at RCH arrived & to our shock it’s really soon. As this is his 20th department he’ll have been seen by at RCH we’re pretty used to the Suspicion>>Tests>>Referral>>EPIC waiting list pattern of the RCH specialist teams. Not this time… he’s been stepping up through the levels of tests since April & after the latest results came in a few weeks ago & further testing on the spot that day things have been full throttle.
Some of his doctors suspect an adrenal tumour, another thinks it could be a previously missed congenital condition, but all agree & the tests confirm something is wrong with his adrenal
system. Now we need to figure out what.
I feel so numb/foggy. I’ve officially after 8 years, 20 departments, 5 hospitals & countless appointments & procedures reached appointment fatigue. Ashton though is the one who truly suffers. He hates the hospital, hates being poked, prodded, needless, xrayed, sedated… rinse & repeat. So, as hard as it is for me I’m holding it together for him as he is such a super trooper.
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